Iain's Lowe Syndrome Trust Donation Page
Event: Flora London Marathon 2005 on 17/04/2005
£295.00 raised
16 donations
My Target:
£295.00 raised so far
How to make a donation
Donate online at - original.justgiving.com/iainstemp
By mobile internet Scan this code on your smartphone to go straight to Iain Stemp's page.
By text message to donate £10 Text £10
to 70070
My story
If you would rather not donate online, then feel free to send sponsorship to me, or to Lowe Syndrome Trust (details on www.lowetrust.com).
18 April 05
The crowds were out in force yesterday in London and I was very pleased to manage to keep running and finish the race. Although my time of 3 hr 24 mins 9 seconds was one of the slowest of the 15 or so marathons I've run, this one meant a lot to me. The reasons being that it has been over 8 years since I last ran a marathon seriously and having concentrated mostly on mountain biking I was carrying a few running related injuries (caused by increasing the training) in to the race yesterday. I wasn't totally confident that I would be able to finish, but so glad I did and for reasons and a cause close to my heart.
Jamie, my 10 yr old son with LS, was watching the race yesterday on TV and said that he would like to run it one day, how I wish that that could be true, he certainly would enjoy the many bands and drums on the couse. But then again he would stop and dance at each one!
14 April 05 Thank you for visiting my fundraising page. Please dig deep and sponsor me online. You may not have heard of Lowe Syndrome Trust or indeed Lowe Syndrome. It is rare genetic condition which is caused by a single defective gene on the X-chromosome - that results in the lack of an enzyme. As a result the condition affects only boys. The condition became known as "Lowe syndrome" named after Dr. Charles Lowe, the senior member of the group that described it. Because of the three major organ systems involved (eyes, brain, and kidney), it is also known as OCRL (oculo-cerebro-renal) syndrome. My 10 year old son, Jamie, has Lowe Syndrome. To find out more then visit http://www.lowetrust.com or http://www.lowesyndrome.org Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Lowe Syndrome Trust will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you. So please sponsor me now! Many thanks for your support.
My gallery 1
My charity
Lowe Syndrome Trust
Charity Registration No. 1081241
The Lowe Syndrome Trust is a UK Charity formed in June 2000 by parents of a Lowe syndrome child. The charity supports families and initiates and funds medical research into Lowe Syndrome. Lowe Syndrome is a genetic disorder that can occur with no family history, affecting boys and multiple physical and mental handicaps including cataracts in both eyes, muscle weakness (hypotonia or floppy baby syndrome), kidney problems, cysts, brittle bones, arthritis, poor growth, mental impairment with behaviour problems (autistic spectrum disorder) and epilepsy. Sadly the life expectancy for these children is short due to the complications of the disease and the lack of funding to find a cure.
Donations 16
well done Iain - see you soon
Donation by John and Linda on 20/05/05
£10.00
+ £2.82 Gift Aid
Donation by Anonymous on 12/05/05
£50.00
+ £14.10 Gift Aid
Donation by Newman family on 10/05/05
£5.00
+ £1.41 Gift Aid
15 Marathons? Wow. (sorry for the delay!)
Donation by Anonymous on 02/05/05
£20.00
+ £5.64 Gift Aid
Donation by Norma on 25/04/05
£20.00
Donation by Anonymous on 25/04/05
£20.00
+ £5.64 Gift Aid
10k run
Donation by TCR - Tom on 25/04/05
£20.00
+ £5.64 Gift Aid
good luck supporting a worthy cause
Donation by gillian on 24/04/05
£10.00
+ £2.82 Gift Aid
Congratulations on another successful finish!
Donation by Anonymous on 24/04/05
£10.00
+ £2.82 Gift Aid
Donation by big chris on 21/04/05
£5.00
+ £1.41 Gift Aid
Donation by thomo on 20/04/05
£20.00
+ £5.64 Gift Aid
Donation by steve keal on 19/04/05
£5.00
+ £1.41 Gift Aid
Donation by Anonymous on 19/04/05
£10.00
+ £2.82 Gift Aid
best wishes for a great marathon
Donation by Anonymous on 17/04/05
£50.00
+ £14.10 Gift Aid
good luck
Donation by Anonymous on 17/04/05
£20.00
+ £5.64 Gift Aid
good luck and have a great day
Donation by Andrew T on 16/04/05
£20.00
+ £5.64 Gift Aid
Donation summary
- * Online donations£295.00
- Offline donations£0.00
- Text donations£0.00
- Total raised£295.00
- Gift Aid£77.56
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
