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Iain's Lowe Syndrome Trust Donation Page
Page creator: Iain Stemp
Event: Flora London Marathon 2005
Event Date: 17th Apr 2005
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The FA Cup Trophy came to Histon
About my charity : Lowe Syndrome Trust Lowe Syndrome Trust
The Lowe Syndrome Trust is a UK Charity formed in June 2000 by parents of a Lowe syndrome child. The charity supports families and initiates and funds medical research into Lowe Syndrome. Lowe Syndrome is a genetic disorder that can occur with no family history, affecting boys and multiple physical and mental handicaps including cataracts in both eyes, muscle weakness (hypotonia or floppy baby syndrome), kidney problems, cysts, brittle bones, arthritis, poor growth, mental impairment with behaviour problems (autistic spectrum disorder) and epilepsy. Sadly the life expectancy for these children is short due to the complications of the disease and the lack of funding to find a cure.
Charity Registration No 1081241
Donations so far:  £ 372.56
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My personal message:

26 April 05 - I'd like to say a BIG THANKYOU for your support & sponsorship.
If you would rather not donate online, then feel free to send sponsorship to me, or to Lowe Syndrome Trust (details on www.lowetrust.com).

18 April 05
The crowds were out in force yesterday in London and I was very pleased to manage to keep running and finish the race. Although my time of 3 hr 24 mins 9 seconds was one of the slowest of the 15 or so marathons I've run, this one meant a lot to me. The reasons being that it has been over 8 years since I last ran a marathon seriously and having concentrated mostly on mountain biking I was carrying a few running related injuries (caused by increasing the training) in to the race yesterday. I wasn't totally confident that I would be able to finish, but so glad I did and for reasons and a cause close to my heart.

Jamie, my 10 yr old son with LS, was watching the race yesterday on TV and said that he would like to run it one day, how I wish that that could be true, he certainly would enjoy the many bands and drums on the couse. But then again he would stop and dance at each one!

14 April 05 Thank you for visiting my fundraising page. Please dig deep and sponsor me online. You may not have heard of Lowe Syndrome Trust or indeed Lowe Syndrome. It is rare genetic condition which is caused by a single defective gene on the X-chromosome - that results in the lack of an enzyme. As a result the condition affects only boys. The condition became known as "Lowe syndrome" named after Dr. Charles Lowe, the senior member of the group that described it. Because of the three major organ systems involved (eyes, brain, and kidney), it is also known as OCRL (oculo-cerebro-renal) syndrome. My 10 year old son, Jamie, has Lowe Syndrome. To find out more then visit http://www.lowetrust.com or http://www.lowesyndrome.org Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Lowe Syndrome Trust will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you. So please sponsor me now! Many thanks for your support.

Display Name Date Amount Tax Bonus  Comment
John and Linda 20/05/2005 £10.00 £2.82 well done Iain - see you soon 
Anonymous 12/05/2005 £50.00 £14.10  
Newman family 10/05/2005 £5.00 £1.41  
Anonymous 02/05/2005 £20.00 £5.64  
Norma 25/04/2005 £20.00 n/a  
Anonymous 25/04/2005 £20.00 £5.64  
TCR - Tom 25/04/2005 £20.00 £5.64 10k run 
gillian 24/04/2005 £10.00 £2.82 good luck supporting a worthy cause 
Anonymous 24/04/2005 £10.00 £2.82  
big chris 21/04/2005 £5.00 £1.41  
thomo 20/04/2005 £20.00 £5.64  
steve keal 19/04/2005 £5.00 £1.41  
Anonymous 19/04/2005 £10.00 £2.82  
Anonymous 17/04/2005 £50.00 £14.10  
Anonymous 17/04/2005 £20.00 £5.64  
Andrew T 16/04/2005 £20.00 £5.64 good luck and have a great day 
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*Total donated online: £295.00
Total Gift Aid reclaimed: £77.56
Amount raised offline: £0.00
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